Transition – moving from Paediatric Palliative Care to Adult Palliative Care

Support for Transition-Age Patients

As young people with life-limiting or life-threatening conditions approach adulthood, the Sheffield Children’s Palliative Care Team helps ensure that care continues smoothly and support remains consistent.

Their role during this stage is to prepare and guide patients and families through the transition from paediatric to adult palliative or specialist care services.

What the Team Provides
  • Early transition planning: The team starts conversations about transition well before the 18th birthday - often from around age 14 - to identify future care needs and preferences.
  • Coordinated care and communication:  They work closely with adult palliative care services, GPs, and other specialists to ensure there’s a clear and supported handover.  This includes sharing the advance care plan and key medical information so that adult teams understand the young person’s condition and wishes.
  • Symptom management and emotional support:  The team continues to manage symptoms, review treatment plans, and support emotional wellbeing during the transition period.
  • Empowering young people:  Where appropriate encourage young people to take a more active role in their care - helping them understand their condition, treatment options, and how to make decisions about their future care.
  • Practical guidance:  Support with navigating adult healthcare systems, social care, education, and community services, helping families understand what to expect after transfer.
  • Partnership working:  Collaboration with organisations such as Bluebell Wood Children’s Hospice, and local adult hospices ensures ongoing, age-appropriate support beyond paediatric services.
If you are a healthcare professional, or a family seeking advice around palliative care transition, please don’t hesitate to contact your local team for guidance available support options.

Transition to adult care - Together for Short Lives – includes information about The Mental Capacity Act and Liberty Protection Safeguards

Adult Hospices in South Yorkshire – Sheffield, Barnsley, Rotherham & Doncaster

1. Sheffield – St Luke’s Hospice

Website: https://www.stlukeshospice.org.uk

Address: Little Common Lane, Sheffield, S11 9NE
Phone: 0114 236 9911
Patient & Family Helpline: 0114 235 7494

Services include:

  • Specialist palliative & end-of-life care (inpatient and community)
  • Symptom management (pain, breathlessness, complex symptoms)
  • Hospice-at-home services
  • Psychological, social, spiritual support
  • Day services, therapies, physio/OT
  • Bereavement support and counselling for families

2. Barnsley – Barnsley Hospice

Website: https://www.barnsleyhospice.org

Address: Church Street, Gawber, Barnsley, S75 2RL
Phone: 01226 244 244

Services include:

  • 10-bed inpatient unit
  • Specialist palliative & end-of-life care
  • Symptom control
  • Counselling and bereavement services
  • Support for patients with a range of life-limiting conditions (cancer, neurological, heart/lung disease etc.)

3. Rotherham – Rotherham Hospice

Website: https://www.rotherhamhospice.org.uk

Address: Broom Road, Rotherham, S60 2SW
Phone: 01709 308 900

Services include:

  • 14-bed inpatient hospice
  • “Hospice at Home” service – 24/7 community palliative-care support
  • Day hospice services
  • Psychological, emotional, and spiritual support
  • Bereavement and counselling support for adults, children & young people

4. Doncaster – St John’s Hospice (RDASH)

Website: https://www.rdash.nhs.uk/services/st-johns-inpatient-unit

Address: Weston Road, Balby, Doncaster, DN4 8JS
Phone: 03000 213 666

Services include:

  • Specialist inpatient palliative-care beds
  • Symptom management
  • End-of-life care
  • Support for families and carers
  • Access via GP, hospital or community palliative-care referral

Additional Notes for South Yorkshire

  • All hospices offer free care, funded through charitable donations plus some NHS contributions.
  • Community palliative-care teams work alongside hospices across South Yorkshire.

Services typically include emotional support, practical advice, and bereavement care for up to a year or more after death