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Children and Young People’s Advance Care Planning, Parallel Planning and ReSPECT
Children and Young People’s Advance Care Plan (CYPACP)
A CYPACP is a Children and Young People’s Advance Care Plan. It’s a written plan that records what is important to a child or young person with a serious or life-limiting condition — including their wishes, preferences, and care needs.
It helps everyone involved in their care — families, doctors, nurses, schools, and hospices — to understand:
- What care and treatments are wanted (or not wanted)
- Where the young person prefers to be cared for
- Who should be involved in making decisions
- What matters most to them and their family
The plan is created together with the child or young person (where appropriate), their family, and the healthcare team. It can be updated at any time as circumstances or wishes change.
FINAL CYPACP Young Persons and Parent Leaflet A5
Parallel Planning
Parallel planning means preparing for different possible outcomes at the same time - for example, planning for recovery, stability, or deterioration.
For children and young people with serious or uncertain conditions, it helps families and professionals think ahead in a balanced and hopeful way. Parallel planning ensures that:
- Families are supported to live life to the fullest now
- Practical and emotional preparations are in place if the child becomes less well
- Everyone involved in care understands what the family wants, no matter what happens
Parallel planning is not about giving up hope - it’s about being prepared for all possibilities so families feel supported and in control.
ReSPECT (Recommended Summary Plan for Emergency Care and Treatment)
A ReSPECT form is a Recommended Summary Plan for Emergency Care and Treatment. It records the key information that emergency healthcare professionals need to know if a person becomes suddenly unwell or is unable to communicate their wishes.
The form is completed by a doctor or senior clinician together with the young person (where possible) and their family. It includes:
•What treatments or interventions should be considered in an emergency
•What care or treatments would not be appropriate or in line with the person’s wishes
•Who should be contacted or involved in decision-making
The ReSPECT process helps ensure that emergency teams provide care that aligns with the person’s values, goals, and best interests.
Learn more here: ReSPECT | Resuscitation Council UK
