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Charities and resources to support your child, you and your family
A national UK charity supporting children and young people with life-limiting or life-threatening conditions and their families. They provide resources, advice, and help connect families to local services.
Contact details:
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Helpline: 0808 8088 100
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Email: helpline@togetherforshortlives.org.uk
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Website: togetherforshortlives.org.uk
A national charity helping seriously ill children, young people and their families across the UK to thrive at home rather than in hospital. They offer information, training, peer support, and help with home and garden adaptations.
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Website: wellchild.org.uk
A UK-wide charity providing specialist nursing support and care for children with complex, lifelong or life-limiting conditions, and their families.
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Website: roalddahlcharity.org
Charities supporting children with cancer
The page lists recommended UK charities that support children and young people with cancer—offering practical, emotional and financial help to families—such as Young Lives vs Cancer, Kids Cancer Charity, Teenage Cancer Trust, The Brain Tumour Charity and others.
Link to charities > Charities supporting children with cancer - Together for Short Lives
Energy Support for families
Together for Short Lives offers practical tips and free advisory support to help families of children with complex needs reduce their energy, water and heating bills safely and efficiently.
Energy support for families - Together for Short Lives
Financial Support and Grants
Together for Short Lives connects families caring for seriously ill children to charitable grants, cost-of-living help and specialist advisors who explore eligibility and support options.
Financial support and grants - Together for Short Lives
Benefits
The page explains that Together for Short Lives helps families of seriously ill children understand and access welfare benefits they’re entitled to, supporting them in navigating the system.
Benefits - Together for Short Lives
Grant giving and wish making charities
Together for Short Lives provides a curated list of UK charities that offer grants and wish-fulfilment services for children and young people with life-limiting or life-threatening conditions, along with guidance on how to check eligibility and apply
Grant giving and wish making - Together for Short Lives
Short Breaks and Holidays
The page explains that Together for Short Lives provides information and links to charities offering free or heavily-subsidised holidays and short breaks for families of children with life-limiting or life-threatening conditions—and how to check criteria and find the right option.
Going on a short break or holiday - Together for Short Lives
Mental Health Support Rsources for Parents, Carers and Families
Mental health is an important part of overall wellbeing. There are several organisations and services that can offer support:
Your Local GP – Can discuss mental health concerns, provide advice, and refer you to free NHS services such as counselling and talking therapies. •🔗 www.nhs.uk/nhs-services/mental-health-services
Mind - A mental health charity offering information, advice, helplines, and online tools for practical support.
🔗 Call for support and information | Helplines | Mind
Samaritians - Provide free, confidential listening support via phone, email , online chat, or letter.
🔗 Contact Us | Samaritans ☎️ Infoline: 0300 123 3393
Citizens Advice - Offers information and links about maintaining mental health and wellbeing.
•🔗 Citizens Advice ☎️ Helpline: 116 123
- Provides information on how counselling can support carers and others.
🔗 www.counselling-directory.org.uk/topics/carers-support.html ☎️ Helpline: 0333 325 2500
