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Down's Syndrome [HIDDEN]
What is Down's Syndrome?
Down's syndrome is when you're born with an extra chromosome. You usually get an extra chromosome by chance, because of a change in the sperm or egg before you're born. This change does not happen because of anything anyone did before or during pregnancy.
People with Down's syndrome will have some level of learning disability. This means they'll have a range of abilities. Some people will be more independent and do things like get a job. Other people might need more regular care.
But, like everyone, people with Down's syndrome have:
- their own personalities
- things they like and dislike
- things that make them who they are
Having a baby with Down's syndrome
In almost all cases, Down's syndrome does not run in families. Your chance of having a baby with Down's syndrome increases as you get older, but anyone can have a baby with Down's syndrome.
Speak to a GP if you want to find out more. They may be able to refer you to a genetic counsellor.
Screening
If you're pregnant you'll be offered a screening test to find out your chance of having a baby with Down’s syndrome. You can have the test at your dating scan (around 11 to 14 weeks). If you have a higher chance, you can have further tests.
The Down's Syndrome Association provides more information on screening.
Local support
For information on local services please use the following links:
Down's Syndrome support for families / carers
Speak to parents and families
It can help to speak to other parents and families who know how you're feeling.
You can do this by:
- getting in touch with people on forums and social media
- going to a support group – ask your midwife or health visitor about local support groups
The Down's Syndrome Association
The Down’s Syndrome Association is the only charity in the UK dealing with all aspects of Down’s syndrome. Their aim is to enable people who have Down’s syndrome to live full and rewarding lives.
The Down's Syndrome Association also has a list of support groups: The groups come in all shapes and sizes, depending on their numbers, ages and the interest and needs in their local area. The groups aim to provide a local network that provides friendship, support, social events and other events and activities.
Mencap - For people with learning disabilities and their families.
Contact - To support and bring together families with disabled children.
